A local man affected by a rare disease is hoping to raise money so he can become more mobile. Ben Parker, 37, from Brockton near Much Wenlock, suffers from Pompe disease, a rare neuromuscular disorder that affects only 100 adults in the UK.
Ben said, “My condition affects every part of my life; I struggle to walk, have breathing issues, the list is endless. I am six foot seven inches tall and use a large mobility scooter, but need a van with a hoist to enable me to transport the scooter.”
Ben is holding a Spring Fete on 20 May at Corve Barn Farm, with face-painting, a bouncy castle, coconut shy, sack race, egg and spoon race, silent auction, Reiki sessions and more.
Ben continued, “My wife Jen and I have been humbled by how many people have come forward to help us. I have a Gofundme page that’s already raised £5,000 and am hoping to get that up to £15,000.”
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